[Angelina Jolie took tomb-raiding to a whole new level in her op-ed piece in yesterday’s NY Times. In the article, the actress/humanitarian/wife/mother/and not-just-in-the-movies-an-ass-kicking-superhero-of-a-woman, shared her own absolute reality of confronting the shit out of breast cancer—before cancer could even think of drawing its pistol out of its holster. She revealed she has the breast cancer gene and has taken decisive action against the BRCA1 mutation she inherited, by way of a recent prophylactic bilateral mastectomy. Reducing her risk of getting breast cancer from 87% to under 5% seems like a no-brainer. It also seems a little barbaric that in this day and age the best we have to offer in the way of a cure/prevention is amputation. Bravo, Namaste, Cheers to Jolie’s health, and props to her, not only for the extreme courage in making such a difficult choice, but also in sharing her story with the world. Her willingness to use her superstar status to increase awareness will save lives. Literally, raid tombs. Collaterally, Jolie’s article, which has gone viral, is bringing much-needed attention to some of the struggles carriers of the BRCA1 and BRCA2 gene face. In today’s guest post, SCAR Girl Sara “Bartowski” Hamilton, who has written HERE about her own struggles as a Pre-vivor, weighs in on the discussion.]
Guest Post by SCAR Girl Sara “Bartowski” Hamilton
I am incredibly thankful to Angelina Jolie. It has been six years since my own prophylactic mastectomy and every time I am sure we have finally made it over the hurdle, I become aware we still have so far to go. And every time someone famous uses their platform to raise awareness and educate the masses, they help us make progress. Because Angelina chose to share her story, more families will hear about the possibility of a genetic component behind family members dying of cancer. They may choose to seek out genetic counseling. They may start communicating about a topic that is very painful. Angelina Jolie talks about her beloved mother and the pain she has that some of her children will never know their grandmother. My mom carries the same pain – my sisters and I only know our Nona through photos and stories. Talking about what is tearing families apart can be difficult but maybe Angelina’s story will help people find courage to talk about the possibility of a genetic component. And having the knowledge of a genetic mutation will help people be able to make choices fully armed with the current research and knowledge we have available.
True to her humanitarian nature, Angelina openly discussed the costs of genetic testing. Let’s be real, for Angelina, this is a drop in her bucket but she understands those costs are going to be prohibitive to others. Immediately my mind went to the case before the Supreme Court and their upcoming ruling on whether or not Myriad will be able to hold a patent on our genes. The reason our testing is so expensive and, therefore, often not possible for those who don’t have thousands sitting in their bank account is because Myriad currently holds a patent. This patent has allowed them to keep the price high when, in fact, the testing should at most cost a couple hundred dollars.
Not surprisingly, I also immediately saw comments from those who show up to judge the choices Angelina has made. Having dealt with harsh judgment throughout my own journey from prophylactic bilateral mastectomy with construction to my recent “deconstruction”, the critics struck a sensitive chord that I feel I’m particularly qualified to address. I wish the critics recognize these choices are not entered into lightly and without heavy consideration. Understandably, this upsets some of my BRCA sisters. It is difficult to make such a life altering decision and then have a mob of cruel critics tell you that you were being drastic or rash. I encourage my BRCA sisters to take these judgments as evidence of the work we still have to do; we obviously have many people who still need to be educated. But don’t take it personally. Stand strong in the reasons you made the choices you made and let your story continue to be told to help those who come behind. Let it also continue driving us to actively embrace that we all have choices and we must reach out our hands to support each other in these choices. The choice to be tested, the choice of surveillance, the choice of prophylactic surgeries, the choice of reconstruction, the choice of being flat*. And every choice is valid. None of our choices are easy but we all make the choices that we feel are best for us in that moment. And I am a perfect example that sometimes our choices will change…and that is okay too.
Later this morning, Brad Pitt showed up for some mad love. He publicly commented on Angelina’s choices and said:
Having witnessed this decision firsthand, I find Angie’s choice, as well as so many others like her, absolutely heroic…All I want for is for her to have a long and healthy life, with myself and our children. This is a happy day for our family.
Maybe for some people it would seem strange that we applaud Brad for making this statement. However, I have talked to the women who decide not to go forward with a prophylactic mastectomy because their partner is not supportive. I have talked to women who are single who and terrified their decision will impact their ability to find a partner. In my own journey, I remember the very real fear and wondering if my husband would find me less than…and again when I was facing extraction I thought surely my hubby would never be able to look at me, touch me again. I love that Brad has spoken because he has given a voice to the men I know – my hubby, the husbands of some of my SCAR sisters – he has shown there are men who find the worth and beauty of a woman in more than her breast tissue. He embraces and admires Angelina’s choices and that is what should be and yet is often overlooked in our stories. I am incredibly proud of the men I know who embrace the choices of their partner and support them any way they can and I am thankful their story has a small piece of the spotlight today as well.
The fact remains, there is NO cure for breast cancer. It kills thousands every year. Genetic cancer, we are told, comes earlier and more aggressively. We also are told that we are at higher risk for recurrence. I pray every day a cure will be found…for my children, for my friends. We can all help get a little closer by not buying into the pink washing of our society – spend time reading about The SCAR Project, Bright Pink, FORCE. Do some hard research about where your donations are going and make educated choices on where you want your money spent. And start raising your voice with us as we scream for a cure.
Much love to you, Angelina Jolie. I wish you did not have to join our sisterhood but I applaud you, one of our newest sisters, for raising your voice and telling the world your story.
*Sara and fellow SCAR girl Barbie Ritzco have founded a Flat AND Fabulous awareness group on Facebook, and a Flat AND Fabulous support group page as well, for those living the Flat AND Fabulous lifestyle.